Letters

August 14, 2011

Care Packages

I’d like to thank Kathleen Burge for her excellent, compassionate article about palliative care (“A Better Kind of Care,” July 24), focusing in part on Paul White. Ten years ago, I was working through these issues with my husband, who had been diagnosed with throat cancer. After surgery and radiation affected his ability to swallow and G-tube feeding became necessary, he decided to forgo chemotherapy. I watched a once hearty man with an outsize love for life gradually wither away. But the last few months were amazing, because we spent great quality time with each other and our son. My husband was able to hike, target-practice, go for boat rides – do things he loved to do. We traveled cross-country to see his huge family and many friends. Our hospice team thought we were nuts, but he did it his way and I supported his decision. His life may have been shorter but it was very rich. For many, the decision to stop treatment and find some moments of peace in the time they have left may be the best option. I salute Dr. Vicki Jackson and her palliative care team at Massachusetts General Hospital for encouraging hope and counseling families through their difficult journeys.

Sharon Binelli / Newbury

My issue with Burge’s piece is that she states that hospice care is not palliative care. It is. Hospice care is not about death. It is about quality of life when one faces a terminal diagnosis. The comfort care that hospice provides is comprehensive, its goal being physical, emotional, and spiritual comfort for the patient and his or her family. It is an unfortunate myth that hospice is an immediate death sentence. While not all palliative care is hospice, all hospice is most definitely palliative.

Donna Hamer / Reading

As a health care consultant, I know that the issues Burge raises are essential. As a wife whose husband has been treated for lung cancer this year, her piece touched my soul.

Ellen Lutch Bender / Newton

Differing Perspectives

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